Antidepression Quandry

For the past several months, I’ve been actively trying to wean myself off of my antidepressants. It’s been going quite well, which is why I’ve been keeping it up. Slow and steady, as I am in no rush. I just feel like it’s time to get off them, and since I know from previous experience how difficult that can be, I figured I would take my time, and just aim for an eventuality. I don’t really want to be taking them for the rest of my life, if I can help it.

I’d forgotten how physically sick I would feel when I changed the consistency of taking them, so I went back to super steady, and made incremental changes as I went along. I keep forgetting when I last took one, so sometimes I still don’t feel great, even though my weaning period has been going on for a long time.

As far as depression goes, however, I’m still feeling pretty balanced. That, for me, has been the main thing to keep an eye on. Even when PMS-ing, though, I’m thus far able to differentiate between when I’m legit upset by something versus weeping unnecessarily hard over a commercial on television.

I mean, I have a new TV now, so everything looks splendid, but still…I can tell when I’m being hormonally over-sensitive, most of the time. So that’s good.

I’m wondering now, though, if I should start taking them regularly again, even just at the lowest dose. I find my ability to focus on one thing at a time is suffering a lot lately, and it occurred to me this morning that it might actually be due to taking myself off antidepressants. It was easier for me to direct my focus when I had something to take the edge off. Is it something I can learn to do for myself, if I keep working my way off of them? I actually don’t know. I’m not entirely sure I ever could. It’s fine on the surface – things still get done, and some of them even get done well. I write everything down now, anyway, because I have trouble remembering things since I started on these MS meds. So keeping track in alternate ways helps me, and is a habit I’ve developed anyway. But it’s frustrating on the inside. I feel almost overwhelmed sometimes, and more often now than I used to. Again, maybe I can learn to focus better, anyway.

But maybe not.

The other point in favour of going back on them more regularly is how, like…not exactly over-sensitive, but I’m having a lot more anxiety now, and as such I am getting much less sleep. I’m constantly thinking about things, and going over things in my mind. That on top of the usual MS fatigue I’ve been experiencing the past few years is making it harder for me to NOT break down and cry about even the smallest things.

Again, maybe in time I’ll learn how to quiet my mind naturally and get better rest. But maybe I won’t. Maybe I never really could. I’m not actually sure.

For now, I’m not really going to make any decisions. I just started thinking about it this morning, and since I’m definitely PMS-ing (bring me salt!) right now, I may as well wait until I at least have whichever faculties I usually have about me again, and go from there!

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Mind Reels Activity

Holy crap guys! So much happening on the Mind Reels front this morning!

Did a little promoting of our Patreon page, as per usual (http://www.patreon.com/TheMindReels – please share – every little bit helps!) and then moved on to other more immediate things.

Am just a step away from confirming the date for our next radio play, which will be happening next week, barring any unforeseen circumstances. I heard back availability from one person, then three more in a row said they were also free on those evenings, so suddenly I have a cast, and now just need to confirm that the studio is available before I cement the details! So excited! We’ll have a couple of new people and some who have done one before, but I don’t think any of them will have really done any together before. Maybe two of the guys. Anyway, I’m super stoked – we’re doing an episode of Ellery Queen this month, and it’s ridiculous! I love these old radio plays. They are so bad they’re great! It’s got to be one of the most routinely fun things I’ve ever done, and I hope this project has the legs it needs to keep going for a long time!

And speaking of projects, we just put the wheels in motion to start yet another one! This one will hopefully expand our content, as well, but in another slightly different direction, which – if it works out – should be amazing! While the radio plays act as a branch of our podcast, this new project will hopefully become a long-term branch of our blog. I am so insanely excited about it, I can barely contain myself! I’d been distracted from it for the past couple of weeks, but as soon as I started working on it again, the initial excitement came rushing back, and I couldn’t wait to take the first steps! Now I’ve started taking them, and while it’s a matter of waiting to see if there is any response from the parties I’m reaching out to, it’s hard not to kind of hold my breath in anticipation. I’m aware that there could be no response at all, or negative responses – I’m aware this might not take off even a little bit, let alone the way I’m hoping – but at the end of the day, I’m a dreamer. I’ll keep dreaming this until it either becomes a reality or falls on its face. I’ll keep believing in the possibilities until I have no choice but to concede defeat.

As well, we have a tentative interview coming up next week, but the only time it can be done is after I have minor-but-painful dental surgery, so it’ll be interesting to see how THAT goes! I was kind of hoping to go home after, walk the dog and go to bed. Instead, I’ll likely be heading downtown to try and hold it together while chatting with one of my favourite people about one of my favourite shows!

How do I get myself into these things?

The first time I did an injection of Avonex (the first MS meds I was taking), I had no idea what the side effects would be for me. Or, I knew the likelihood, but not the severity. So naturally, the next morning was the only time we could do an interview with friends who were in town. I was a mess, so it’s good that we were just audio in those days, but holy hell is that ever NOT a way to discover how a medication will affect you!

This situation will be different because, unless my meds react poorly with one another, I’ll mostly just be dealing with pain. Which is not ideal, but it still should be fine, more or less.

I just…how do I get myself into these things? #becauseicantsayno

Dealing With A Diagnosis

I read this thing on FB yesterday, and while the first line was something I could sort of relate to, the majority of the rest of it was not.

The opening line had something to do with there being certain moments in your life you would never forget – when you realized your husband was about to propose, the birth of your child, and being told you had MS.

Now…I don’t know about those first two moments, per se, but I imagine they are fairly unforgettable. And I agree that I probably won’t forget receiving a diagnosis any time soon.

But the whole rest of the post was so different from my experience that it’s almost funny.

Optic neuritis was the writer’s flare up which led to her diagnosis, same as mine.

She received a phone call; I was sitting in my neurologist’s office.

She’d waited a whole four days to find out why she couldn’t quite see out of one eye. I waited the better part of a year, which was still obscenely quick for an MS diagnosis. I lucked out in that all of the specialists had an idea of where my path was leading, and knew what to look for.

She collapsed to the floor sobbing and picturing wheelchairs; I went to work for the rest of the day.

Her husband held her like he’d never held her before; I dealt with it on my own, alone.

Mind you, I’d also done a ton of research. As soon as the possibility of MS came up, I went online and started reading about all of the horrifying things the disease can do to your body, but I also started looking into the 3 first line medications my neurologist told me he’d be considering if MS turned out to be what we were dealing with. I went into various forums and learned first hand what other people experienced with each one, and how they dealt with the side effects.

I even watched a video of someone giving herself an injection, but I was pretty sure I would be going the pre-mixed Pen route instead.

Anyway, there was one appointment when I thought the neurologist was going to call it, and I took the day off work, just so I’d have time to process. He didn’t, though, so I had a decent enough day off from there. The day he DID call it, I actually wasn’t expecting it, so still felt a glimmer of shock roll through me at hearing the actual words.

Then all my research brain stuff kicked in, and I told him which medication I’d decided to try first. He was super impressed that I already knew so much, and we filled out the application form right then, which he faxed in from his office. I was learning to do my first injection within a couple of weeks, I believe.

I asked a friend to come over for the injection training session, in part to help keep the kittens out of the way, and in part to help me remember the steps for when I would do the next one on my own. Probably also just so I wouldn’t be alone. Nurse Billy wasn’t the most comforting presence ever, to be honest. I dealt with the side effects alone, however. And they sucked. But I got better at it once I knew exactly what I was dealing with.

I remember Tim went ahead and set up a brunch/interview/chat with some filmmaker friends for the next morning. I was so mad – I had no idea how my body was going to react to the injection, let alone how I’d feel in the morning. I made it out, but hadn’t slept much and was still feeling many of the flu-like effects the whole time. I got better at managing the immediate and next day side effects, but man. A little consideration after that first injection would have been nice!

Anyway. Mostly I am glad that I can do these things alone, and don’t feel the need to have other people around me all the time. If I ask someone to go to an appointment with me, for example, or any of the tests I have to get done, I tend to focus on them more than on myself. I feel like I have to talk to them, entertain them, do something to make sure they’re not too sorry they came with me. But sometimes I don’t really want to talk. Sometimes I just want to wait until it’s my turn to get it over with and move on with my day.

Sometimes – most times – I’d rather just stay inside my own head for awhile, and not feel like I have to interact and be “on” all the time.

Do I think that makes me better than the lady who wrote the post about being a mess and having a large support system? Yes, yes I do.

Haha

Not really; it’s just different. Part of me is mortified at the thought of not having the time and space to process things on my own. But part of me is jealous of that level of support and help from other people.

Above all, however, is the understanding that I chose my own path, each and every time, for better or for worse.

The fact that I am mostly successful in making it work for me is what makes me awesome. Well…one of the things, at least!

Interesting Day

Interesting day.

Physically taxing, yet somewhat emotionally rejuvenating.

I had kind of a hard week – work, fatigue, the heat, stress, sadness yet trying to wean off antidepressants, and a general malaise in every facet of my being.

I am tired.

This morning, I helped out a raccoon who took longer than usual to accept my aid, but I finally saw them run across the street to head home for the day.  Then I carried home a sweet little cabinet that was on the curb – it was heavier than it seemed at first, and about did me in on a physical level.  My muscles have been shaking ever since; every cell of my body feels drained.

Totally have great nerdy plans for that cabinet, though.

Then, after much back-and-forth deliberation, I went to the zoo.  Had a brief but amazing time with equally amazing friends,got to see inside the white rhino barn and met Tony, the handsomest white rhino I’ve ever seen.  He is astounding up close – at least as close as we got today.  I can’t even imagine being able to touch him and look directly into those deep, gentle eyes of his.

Also, there was swag, some of which I scored thanks to those aforementioned amazing friends, and am so excited to add to my zoo-related belongings!

And there were crayons.  And, hence, colouring.

I decided to stay longer to hang out with young Miss Juno, who was being ridiculously cute and even lingered by the fence with me for a while.  Also helped a nice older lady plan her tour of zoo babies, which was fun!

I was running out of steam in the Eurasia Wilds when I met up with another friend, but decided that I could not leave in good conscience without seeing the baby lynx and my beloved gorilla troop.  So I stayed longer than planned, but added the giraffes (Kiko has grown taller, I believe), and a repeat viewing of the polar bears – as well as other animals along the way – to the mix.

Now I’m extra exhausted, and everyone hurts.

But I can’t say it wasn’t worth it!

Thanks friends!  🙂

PS Too tired to proofread this – sorry for any errors I didn’t catch while typing!

 

Spirograph

If all lives really mattered, wouldn’t we all be a lot less douchey about those not our own?

So much reacting without thinking.

Whereas, some days, thinking is pretty much all I do. I’ve been thinking a lot about relationships lately. Not, like, the dating kind. Obviously I am far too angry to date. Not specifically those, anyway. Just the ways in which I relate to others, and how they relate to me. Friendships, mostly, though some family and date-ish-like relationships, too.

Tomorrow I get to spend a large part of the day with one of my longest, closest friends, and I can not freaking wait! I can’t even remember the last time we got to hang out together like this…unless you count the day we spent in a clinic while I took my first dose of Gilenya, but I’m sure both of us would have rather been hanging out somewhere else. Somewhere we could talk and laugh and be ourselves more completely. Maybe somewhere with alcohol. Haha

Tomorrow will be much more “us”. Outside of eating chips in our pj’s while watching old episodes of “V” on VHS, of course.

Anyway, I am ridiculously excited about it – about just having the plan, let alone how much fun and cathartic it’ll be to actually do it all!

Another of my longest closest friends is in town this week with his wife, whom I haven’t met yet but feel like we’re going to get along splendidly together. We haven’t created an actual plan to hang out yet, but we will…it’s just a matter of finding mutual gaps in our schedules. But since I am also off tomorrow through Sunday, I think we should be able to figure something out!

I am ridiculously excited about that, too – I don’t even care what we do, so long as we’re together for a time!

I’m not sure if I feel so close to those two people because I rarely see them, but when I do, it’s like no time has passed, or if it’s because I’ve lived with both of them before. In the same house, just not at the same time. Maybe it was the house that cemented our friendships. Maybe it was the time period – I was fully out and feeling pretty cocky about my awesomeness; I thought at the time that I was pretty open about who I was, or at least as much as I had discovered so far. So I wonder if my frustration now is in feeling like I am less open than I was? Or the same but wanting to be more? Am I just more aware of feeling like I don’t know how to be the kind of friend to certain others that I want to have for myself? I definitely feel more guarded with new people now. I hadn’t been devastated yet when I met those friends from my 20’s.

Maybe some people just better at seeing through my crap and calling me on it and moving both of us past it. Maybe my newer friends just haven’t been given the chance to get there yet.

The interesting thing to me is that – regardless of the when or the how long – none of my closest friends ever consider me to be their closest friend. Or rather, they’ve always had people in their lives who are closer to them than I am. Just as I always have people closer to me than anyone who’s considered me one of their closest friends. It’s like some weird spirograph of connections; always fluid and changing and growing and shrinking and yet somehow still working somehow.

For the most part. There are times I still long for a more balanced mutual connection – to the point where I find myself even trying to force it sometimes – but for the most part, the spirograph works, and everybody gets what they need, more or less. Trying to force something to be what it’s not just because we want it to be something else…really doesn’t work for anyone. Which I of course know, but that doesn’t stop me from trying sometimes, even though I know it’s not going to turn out the way I want it to. Sometimes I just can’t help myself, I guess. Maybe I haven’t figured out the difference between reaching for what I want versus fighting a losing battle.

Maybe I still haven’t been able to even tell the two apart.

Monday

Had a lovely bout of 3am anxiety again this morning, but eventually went back to sleep after about an hour and a half or so, I think. I can’t really remember what I dreamed about, only that I did dream. Of course, I’m also pretty tired, and that makes it hard to think.

Man, I just don’t know. There’s so much I feel like I can’t talk about. Not just to you guys, but to anyone. Sometimes it all builds up and spills over a little. It’s frustrating.

There’s a lot coming up this week for me, I think. Got some news at work this morning which will directly affect my role, although I’m not sure how much or how little. Will have to wait and see, I guess. The Mind Reels is potentially doing our first radio play later in the week, but I’m still struggling to find people who can fit it into their schedule this week, so may have to push it to next week. I’d rather not, just because it’s already been changed a couple of times to try and accommodate various shooting schedules, but if we can start off this new segment of the show with a strong cast, I think it’ll really have some legs. So as much as I’d hate to reschedule yet again, I know it’d be worth it to get the caliber of performers I’m hoping to. I also have my volunteer orientation at the place I’ve been thinking about volunteering. I’ve also been thinking about backing out, but I’m determined to at least see how the orientation goes before I make any actual decisions on that front.

I’m also aware that it’s one thing to commit to something like that in the summer months, and an entirely different affair to remain committed once February hits. We’ll see. I stress out about this kind of thing ahead of time, trying to contemplate all possible scenarios – which, of course, is impossible. But I try, anyway. I figure there is at least an attempt to meet life halfway if I manage to not make any decisions until I’ve actually checked it out, rather than deciding based on my initial freak out period.  Plus, all signs are pointing to the notion that I should do it.  Fingers crossed for a shift in my life that changes things for the better.

I can’t remember if I mentioned before that my most recent neuro appointment went well. It was probably one of the best yet, actually. I’m not having any flare-ups or relapses, my bloodwork was fine (because I didn’t drink the night before this time), and my MRI, while just of my brain, showed no new lesions forming, and no growth in the ones already in there. My neurologist actually exclaimed, “Yes!” when he looked at the scans. I thought for a moment he was about to hi-five me. He was pleased, so I was, too.

Just messaged a couple of more possible guest cast members for the radio play, just in case they are available on such short notice. The hope is to do this first one, and then do a second one soon after, when even more people are potentially available to join us. It wouldn’t get posted on iTunes until late July, but if we could get the first two episodes recorded and in the can quickly, that would set the tone and I believe it would all just grow from there. If need be, we’ll push the first one into July, but if we can do it this week instead, I’ll be thrilled.

Technically, there is a fuck ton of just Mind Reels stuff to do, and the sooner the better. The next voting round for the Reelies has to get started, there are a handful of guests for regular interviews that we need to schedule, we’re trying to do the Mind Reels Minute once a week, and get this radio play thing going. I’m pretty excited about all of it, too, so it’s hard for me to focus on any one thing, rather than flit about and try to do it all.

As I do, apparently. Geez. No wonder I can’t sleep.

Oh! I also heard back from GWR about a question I’d asked regarding one of the attempts I’ve been approved to make. This one I am doing with a partner, so I can at least now talk to him about it more and start actually planning and working towards breaking that one. More details after he and I confirm that we’re actually going to try for it, but I’m more hopeful than I was before I got the clarification email from GWR. Much more, actually.

I’ve also been waffling on the other attempt I’ve been approved for, but at the moment, I think I’m not only going for it, but I’m also thinking of putting it out into the world and enlisting assistance from basically everyone I know. If not everyone they know, as well. Haha

We’ll see. I just formulated a vague plan yesterday while I was day drinking, so I’ll wait until it’s more clear before I talk about it in detail.

That’s it for my lunch break. I have a lot of work today because I was just off for 4 days, and while much happened in my absence, just as much did NOT happen, so I best get to it.

Rambling Mind

I don’t understand what’s going on. At all. Maybe nothing. I have no idea. There is, of late, a huge disconnect between my inner and outer realities. Add a healthy dose of PMS into the mix and the confusion is overwhelming. So isolating. Perhaps I am just succumbing to my usual paranoia and uncertainty. Though it’s often been right in the past – can it still be deemed paranoia if it ends up being correct?

Meh. Questions without answers, really. Better to just keep plodding along and wait for my next break.

I have my next MRI on Sunday. While I’m technically hoping it will be a quick session, I feel it’s much more likely that it’ll be one of the long 45-minute-IV-with-contrast-material types, instead. It makes more sense, since it’s just my annual check-up type one and they’ll want to get as much detail and cover as much territory in the scans as possible. I just really hate those ones, and am running out of ways to entertain myself while in the tube for that long. However, at least it’ll be over with, and since Monday is a holiday, I’ll be able to just relax and do nothing, if I want, the whole next day. That’ll help. Usually I feel more than a little off once I come out of the machine. I know it doesn’t do anything to me physically, but my mind feels cloudy, anyway. Maybe from focusing on remaining still while not letting claustrophobia set in.

There should be a law against cologne – or artificial scents of any kind – that I can smell even if I am not near you. Seriously people. What kind of nastiness are you trying to cover up by dousing yourself so completely in something else?

Anyway.

I’m frustrated at this whole not working Saturdays thing. I know, sounds weird, but there are several reasons why I’m feeling this way. Aside from the fact that it’s a shorter work day, and earns a longer weekday off, which is sometimes enough. But it would give me the opportunity to do other things I want to do sometimes. Like go to the zoo. I hate going on weekends, through the summer at least, because of the hoards of sweaty hairless apes in my way, ruining my Zen thing. But if I want to go on a weekday, I have to burn a vacation or sick day to do it. I got turned down for volunteering at the Wildlife Centre because the weekend shifts are first to go, and those are the only ones I could do. I probably wouldn’t be a Big Sister again anyway, but that’s another thing I can’t do. Not the in-school mentor program, at least. I can see my therapist if I book an appointment first thing and then head to work after, which doesn’t always have me in the greatest headspace for the rest of the work day. Sometimes it’d be better if I could just go home after and process. But I can’t, unless I am willing to burn a sick day, o vacation day, if I know far enough in advance that I won’t feel up to coming in that day.

Overall, it’s fine. I’ve just been feeling lately like I am having to give up a lot of the things that I’d enjoy or look forward to or benefit from in some way in order to continue receiving a paycheque. That is, of course, the most important thing, because without that I’d have far less opportunity than I do now. I guess I’m just sad that this seems to be all there is, and I am struggling to make even that much balance out. It’s depressing sometimes.

In other news, Mr. Brodykins has an appointment with the groomer on Saturday! He will hate every moment, except the ones where he gets to hang with Momma Kristi and ride in the car. Probably on her lap, if he gets his way. That’s his preferred mode of travel, after all. I hate leaving him there, knowing how miserable it makes him, but he does love being picked up after, and being told how utterly adorable he is. He likes to show off a bit, at that point. Maybe I’ll see about getting him some kind of little special treat for being a good boy. Because he’s always a good boy. He hates the whole grooming process with the seething fire of a thousand suns, but he doesn’t fight it. Instead, he freezes in his silent misery, and tolerates it all until it’s finally over. And then gets unnaturally excited when you put his collar back on.

Bless.

I love that little guy.

I don’t know. Maybe I’m just so in my head I don’t really know what’s accurate or real anymore. Or maybe my instincts are good enough that I’m getting the hints being put out there, but am just not certain enough to react. Maybe there’s nothing to react to at all. Regardless, I feel dumb, so hopefully I can figure out at least some of it soon. It’s seeming pretty manic, really. I’m still here, though, so as much as I am trying to sort some things out, I’m also trying to, like, live day to day life. It’s all I can think to do, sometimes.

Long weekend coming up finally, and then next weekend is the first one I booked off for myself. Four days in a row! I don’t know how I’ll manage NOT to give myself so much to do that I won’t get it done and then be disappointed in myself…but I’m going to try not to give myself so much to do that I don’t get it done and feel disappointed in myself.

A co-worker just asked if it was Friday yet – it’s like he’s reading my mind. I was just thinking how far away Friday still is, but that it’s kind of a good thing because I have a lot to do in the meantime.

I was looking up screenwriting contests yesterday to see if there were any deadlines I could aim for but realistically meet. I realized that I’m not anywhere close to ready to start writing the updated adaptation of my first book, though. I need to sort out the changes that will be made and how they’ll all go together with the parts of the story that are being kept. I’ll work on a new outline first, and then consider starting the script.

Why can’t things in our heads just come out on paper automatically?